On September 2nd, 2010 our four-year-old daughter, Sophie, was diagnosed with juvenile dermatomyositis (JDM), an auto-immune disease that attacks her muscles and skin. I have decided to write about it. Here is why:
1. It is a practical way to update concerned friends and family on Sophie's health and treatment.
2. It is therapeutic.
3. It is not secret or shameful to have a disease.
4. Although it is rare, we are not the only family to have a child diagnosed with JDM and there is a chance that we can provide information, solace or "connection" for others by sharing our story.
5. I have found that when you share your thoughts, feelings, fears and dreams, AMAZING things unfold--and you discover that you are not alone.
You are four!!!
Make a wish.
Thursday, September 30, 2010
Sophie Myn
On September 2nd, 2010 our four-year-old daughter, Sophie, was diagnosed with juvenile dermatomyositis (JDM), an auto-immune disease that attacks her muscles and skin. I have decided to write about it. Here is why:
1. It is a practical way to update concerned friends and family on Sophie's health and treatment.
2. It is therapeutic.
3. It is not secret or shameful to have a disease.
4. Although it is rare, we are not the only family to have a child diagnosed with JDM and there is a chance that we can provide information, solace or "connection" for others by sharing our story.
5. I have found that when you share your thoughts, feelings, fears and dreams, AMAZING things unfold--and you discover that you are not alone.
1. It is a practical way to update concerned friends and family on Sophie's health and treatment.
2. It is therapeutic.
3. It is not secret or shameful to have a disease.
4. Although it is rare, we are not the only family to have a child diagnosed with JDM and there is a chance that we can provide information, solace or "connection" for others by sharing our story.
5. I have found that when you share your thoughts, feelings, fears and dreams, AMAZING things unfold--and you discover that you are not alone.
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wow. You are one brave soul, and my guess is that Sophie is even braver. How lucky she is to have you for a mom. My thoughts and prayers are with you guys as you start this journey, Keri.
ReplyDelete~ Happy
Your courage is incredibly inspiring. We are all here for you. -The Azizzadeh Family
ReplyDeleteI think it is an absolutely wonderful thing you are doing to get the word out that could possible help other children. Sophie is very brave! My heart goes out to you and your family
ReplyDeleteSophie is one tough little girl and so is her mom. Thinking of you all everyday. We love you guys. Roya
ReplyDeleteYou're right on all counts and I applaud you. I am rooting for you and Sophie on this marathon and I KNOW you will cross the finish line. I love you! Lisa
ReplyDeleteKeri, I'm so sorry to hear this! You are an amazing mom and your entire family is lucky to have you, especially Sophie. Thank you for being so brave to share. I'm thinking of you and Sophie. K. Weber
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteKeri,
ReplyDeleteYou are my hero! Sophie is in our thoughts and prayers daily. We love you and your beautiful family. Keep fighting! Yassi
Wow. I'm shocked. But I know that you will be the best advocate for Sophie and will fight this and triumph. My thoughts and prayers are with you.
ReplyDeleteKate Benett